Baxter BioTherapeutics | Europe | Primary Immunodeficiencies (PID) Commitment

Patient Commitment | Primary Immunodeficiencies (PID) Commitment

JMF

The Jeffrey Modell Foundation (JMF) is dedicated to awareness, early diagnosis, treatments, and eventual cures of PID diseases. Fred and Vicki Modell established the JMF Foundation in memory of their son Jeffrey, who died at age 15 of pneumonia due to an underlying PID disease.

JMF Support Highlights

IPOPI

International Patient Organisation for Primary Immunodeficiencies (IPOPI) is working to improve access to early diagnosis, optimal treatment, and care. The organization also works to establish new national member PID organizations and acts as the global voice for its member PID organizations.

IPOPI Support Highlights

EU Consensus Conference on Primary Immunodeficiencies Paul Ehrlich Institute, Langen, Germany June 19-20, 2006

Baxter was a diamond sponsor for this conference and supported IPOPI and the European Commission in this endeavor. In order to further address PID as a public health issue, the European Commission is driving several initiatives and recommendations.
Consensus Conference goals are to
- Help create awareness within EU governments of the negative impact PIDs currently have on their healthcare systems and undiagnosed patients.
- Show the varying standards of care and treatment that exist for people with PIDs across the EU.
- Formulate a plan of action and short-term actions that member state governments can take to help reduce the burden of PIDs.

ESID

Baxter provides funding for the European Society for Immunodeficiencies (ESID), which is a non-profit organization having multiple aims. The main objectives are to facilitate the exchange of ideas and information among doctors, nurses, biomedical investigators, patients and their families concerned with PID diseases, and also to promote research on causes, mechanisms and treatment of these disorders.

ESID support highlights

Patient registry. The goals of the registry are to:
- Collect clinical data of patients with PIDs
- Improve diagnosis
- Enhance classification
- Improve prognosis
- Optimize therapy
- Compile long-term data on PIDs
- Further genetic and therapeutic trials within ESID

IDF

The Immune Deficiency Foundation (IDF), founded in 1980, is a US non-profit patient organization dedicated to improving diagnosis, treatment, and quality of life for individuals with PIDs through advocacy, education, and research.

In the United States, there are approximately 250,000 people diagnosed with PID. Thousands more go undetected. These individuals often find it difficult to receive specialized health care, proper diagnosis, and treatment. They also experience difficulties financing their health care, finding educational materials on their disease, and locating others with whom to share their experiences. The mission of IDF is to help individuals overcome these difficulties and live a healthy and productive life. The presence of IDF assures patients, their families, and their medical caretakers that there is a place to turn for help. To learn more about IDF, visit www.primaryimmune.org.

IDF Support Highlights

Direct services to individuals and families
- Patient advocacy programs
- IDF volunteer network
- Patient and family education meetings
- Youth program
- Educational and awareness materials including the IDF Patient & Family Handbook For Primary Immunodeficiency Diseases
Medical and scientific programs
- Consulting Immunologist program
- Visiting Professor program
- Medical meetings and exhibits
Public policy
- Access to quality healthcare
- National and state-level advocacy
- Grassroots advocacy network
Survey research

	JMF The Jeffrey Modell Foundation (JMF) is dedicated to awareness, early diagnosis, treatments, and eventual cures of PID diseases. Fred and Vicki Modell established the JMF Foundation in memory of their son Jeffrey, who died at age 15 of pneumonia due to an underlying PID disease. JMF Support Highlights JMF Diagnostic and Research Centers Worldwide Jeffrey Modell Immunology Center at Harvard back to top
	IPOPI International Patient Organisation for Primary Immunodeficiencies (IPOPI) is working to improve access to early diagnosis, optimal treatment, and care. The organization also works to establish new national member PID organizations and acts as the global voice for its member PID organizations. IPOPI Support Highlights EU Consensus Conference on Primary Immunodeficiencies Paul Ehrlich Institute, Langen, Germany June 19-20, 2006 Baxter was a diamond sponsor for this conference and supported IPOPI and the European Commission in this endeavor. In order to further address PID as a public health issue, the European Commission is driving several initiatives and recommendations. Consensus Conference goals are to Help create awareness within EU governments of the negative impact PIDs currently have on their healthcare systems and undiagnosed patients. Show the varying standards of care and treatment that exist for people with PIDs across the EU. Formulate a plan of action and short-term actions that member state governments can take to help reduce the burden of PIDs. back to top
	ESID Baxter provides funding for the European Society for Immunodeficiencies (ESID), which is a non-profit organization having multiple aims. The main objectives are to facilitate the exchange of ideas and information among doctors, nurses, biomedical investigators, patients and their families concerned with PID diseases, and also to promote research on causes, mechanisms and treatment of these disorders. ESID support highlights Patient registry. The goals of the registry are to: Collect clinical data of patients with PIDs Improve diagnosis Enhance classification Improve prognosis Optimize therapy Compile long-term data on PIDs Further genetic and therapeutic trials within ESID back to top
	IDF The Immune Deficiency Foundation (IDF), founded in 1980, is a US non-profit patient organization dedicated to improving diagnosis, treatment, and quality of life for individuals with PIDs through advocacy, education, and research. In the United States, there are approximately 250,000 people diagnosed with PID. Thousands more go undetected. These individuals often find it difficult to receive specialized health care, proper diagnosis, and treatment. They also experience difficulties financing their health care, finding educational materials on their disease, and locating others with whom to share their experiences. The mission of IDF is to help individuals overcome these difficulties and live a healthy and productive life. The presence of IDF assures patients, their families, and their medical caretakers that there is a place to turn for help. To learn more about IDF, visit www.primaryimmune.org. IDF Support Highlights Direct services to individuals and families Patient advocacy programs IDF volunteer network Patient and family education meetings Youth program Educational and awareness materials including the IDF Patient & Family Handbook For Primary Immunodeficiency Diseases Medical and scientific programs Consulting Immunologist program Visiting Professor program Medical meetings and exhibits Public policy Access to quality healthcare National and state-level advocacy Grassroots advocacy network Survey research back to top